TVSCN > Networks > End of Life Care

End of Life Care

The SCN was fortunate to secure central funding to support the Clinical Commissioning Groups to deliver their End of Life plans. This enabled the appointment of Dr Barbara Barrie (a West Berkshire GP) as a generalist clinical lead, and Dr Jane Bywater (Consultant in Palliative Medicine – Sue Ryder Hospice, Nettlebed) as the specialist clinical lead to provide clinical leadership across Thames Valley and Milton Keynes supporting and enhancing the work of locality groups.

With a focus on-

  • Implementation of the recommendations of the Once Chance to Get it Right report
  • Increased adoption of electronic palliative care co-ordination system
  • Increased proportion of people dying in their choice of place of death

We have also been encouraging rollout of the Electronic Palliative Care Co-ordination Systems (EPaCCS) and enabling a self sustaining Commissioners Forum to promote discussion around challenges and barriers to delivering good quality EOL care and also to share good practice. Our workstream aligns with the recommendations of the 5 Year Forward View, in particular around focusing on patient centered care, promoting partnerships and integration across health and social care whilst allowing for local flexibility, with the aim at all times of improving quality via strengthening patient safety, clinical effectiveness and patient experience.

As first point of contact, please e-mail Julia Coles on

Recent Workshops, Resources & Future Dates

Is There a Ceiling to Medical Care? workshop
On 9th May, we held our Is There a Ceiling to Medical Care workshop. You can download the presentations below:

Caring About Capacity and Human Rights at the End of Life
On 27th March, we held our Caring About Capacity and Human Rights at the End of Life workshop. You can download the agenda, presentations from the day, and information on Sue Ryder end of life training sessions below:

Download the agenda for the day here

Frailty the Forgotten Voice in End of Life Care
On 14th March, in conjunction with the Wessex, KSS ASHN and South West SCN End of Life Networks, we held our event Frailty the Forgotten Voice in End of Life Care. It was a fascinating day with a lot of lively discussion. You can download the speaker biographies and presentations below.

Download the speaker biographies here


Strategic Challenges in Urgent & Emergency Care: Supporting Patients in their Last Months of Life- 28th Feb 2017.

Professor Bee Wee – Overview of the National End of Life Care programme.

Dr Sam Bennett – End of Life Care Commitment.

Professor Jonathan Benger – EOLC Challenges and Solutions for the Urgent and Emergency Care System.

Simon Holbrook & Dr Barbara Barrie – The Optimum Urgent Care Pathway for People at End of Life

Dr Dan Lasserson – Out of Hours Primary Care Use at the End of Life

Dr Caroline Stirling – Recommended Summary Plan for Emergency Care and Treatment (ReSPECT)

Paul Hayes- Finding the Way Forward

Challenging our Thinking- Changing the Status Quo: Examples of Regional Best Practice

Nicola Callam-Parry – ‘Berkshire West PallCall Services’

Lesley Goodburn – ‘Personal Health Budgets at EOL – An Acute Perspective’

Sarah McGaughey –‘NHS home care and nursing home beds’

Dr Steve Plenderleith – ‘The Future Planning Project’

Louise Smith – ‘The Role of Primary Care AUADES+’

Helen Meehan – ‘Let’s get the conversation started – the Conversation Project’

NHS England National EOL Resources – Interactive Workshop & Summary of Resources.


Serious Illness and End of Life Conversations- 24th Jan 2017

Intermediate Level Communications in EoLC Skills Pathway

Archive – 2016

Challenges in delivering person-centred end of life care for people with long term conditions: Chronic Cardiac Disease. 2nd Nov 2016.

Dr James Beattie- The end of life journey for cardiovascular conditions.

Dr Anant Sachdev- The Primary Care Clinician’s role.

Jacinta Godden- Case study -EOLC ICD

Ambitions for Palliative and End of Life Care: Is your Community Compassionate? 22nd March 2016 “How do we draw on the wider community to put the heart back into dying?”

Dr Joshua Hordern – Healthcare Values Partnership – Civic Compassion for Healthcare Today
Oxfordshire Age UK – Compassion in Dying: My Life, My Decision – Befriending for Life
Bereavement Support Groups – Age UK Oxfordshire – Late Spring

Better ways to learn: Supporting the delivery of education and training in End of Life Care, 9th February 2016

Medics and end of life care – Typical medical education pathway in UK (PDF)

Rhonda Riachi, Project Manager, Rosemary Martin Clinical Fellow – Health Education Thames Valley (PDF)

Rosemary Martin and Liz Rankin – Handout: Games as part of EOLC training (PDF)

Mary Williams and Fiona Gracie – Embedding learning in practice (PDF)

Frimley Health – Using Simulator Training in End of Life Care (PDF)

Virginia Allum – Scenarios handout (PDF)

Using Motivational Interviewing Techniques in Primary Care (PPiPCare) (PDF)

Archive – 2015

Dementia & End of Life Care Workshop Resources, 1st December 2015

Susan Martin, Clinical Nurse Specialist – Dementia and end of life care (PDF)

The North West End of Life Care programme for Care Homes – Six Steps to success (PDF)

Susan Martin, British Journal of General Practice – Best interest clinical decision making for care home residents with advanced dementia (PDF)

Berkshire Advance Care Planning Document – January 2014 – Planning for My Future Care (PDF)

SATMATCO : the Saturday Matinee Company presented their production Connie’s Colander which deals with the unsought of dementia and the relationship between a mother and her Daughter. Please see the clip below. Also please visit the SATMATCO website.

End of Life Care Workshop Resources, 8th October 2015 – The Frail, The Elderly – Not ready to die yet

Professor David Oliver, Consultant in Geriatrics & Acute General Medicine (RBFT) & Kings Fund Senior Visiting Fellow –
Making systems fit for an ageing population – Implications for palliative care? (PPT)

Dr Jeanne Fay, GP in Interface Medicine, Witney Emergency Multi-disciplinary unit – Frail, Elderly, Palliative & EOLC (PPT)

End of Life Care Workshop Resources, 22nd September 2015 – Difficult Decision Making

Dr Jo Withers, GP Westongrove Partnership (Bucks) and Pippa Stevens (Executive Coach) – Having the conversation (PPT)

Dr Fiona Lisney, Consultant in Palliative Medicine, Frimley Health (Wexham Park) –Difficult decisions (PPT)

TVSCN End of Life Care – Difficult Questions – Update (PDF)

Archive – 2014

End of Life Masterclasses
MASTERCLASS 1 : “One Chance to Get it Right” led by Dr Ben Lobo – Presentation:
Inspiring Improvement in End of Life Care Presentation (PDF)
MASTERCLASS 2 : Commissioning for Outcomes. Led by Dr Peter Nightingale – Presentations:
Peter_Nightingale_Reading talk (PDF)
Rachna Chowla Thames Valley EoL presentation (PDF)
MASTERCLASS 3 : Culture, spirituality & ethnicity, End of Life Care -Led by Professor Wilf McSherry – Presentation:
Master Class 27-01-2015 (PDF)
MASTERCLASS 4 : Future developments for specialist palliative care in the Thames Valley – adults and children -Led by Dr Bee Wee – Presentations:
Debbie Raven Thames Hospice (PDF)
Dr Bee Wee (PDF)
Dr Faeqa Hami DA FRCP (PDF)
Helen Children’s Hospice Services (PDF)
Sobell House Hospice (PDF)

Dr Barbara Barrie

Macmillan GP Facilitator & End of Life Care Facilitator

Dr Jane Bywater

Consultant in Palliative Medicine & Clinical Lead (Specialist)