The SCN was fortunate to secure central funding to support the Clinical Commissioning Groups to deliver their End of Life plans. This enabled the appointment of Dr Barbara Barrie (a West Berkshire GP) as a generalist clinical lead, and Dr Jane Bywater (Consultant in Palliative Medicine – Sue Ryder Hospice, Nettlebed) as the specialist clinical lead to provide clinical leadership across Thames Valley and Milton Keynes supporting and enhancing the work of locality groups.
With a focus on-
We have also been encouraging rollout of the Electronic Palliative Care Co-ordination Systems (EPaCCS) and enabling a self sustaining Commissioners Forum to promote discussion around challenges and barriers to delivering good quality EOL care and also to share good practice. Our workstream aligns with the recommendations of the 5 Year Forward View, in particular around focusing on patient centered care, promoting partnerships and integration across health and social care whilst allowing for local flexibility, with the aim at all times of improving quality via strengthening patient safety, clinical effectiveness and patient experience.
As first point of contact, please e-mail Julia Coles on firstname.lastname@example.org
Is There a Ceiling to Medical Care? workshop
On 9th May, we held our Is There a Ceiling to Medical Care workshop. You can download the presentations below:
Caring About Capacity and Human Rights at the End of Life
On 27th March, we held our Caring About Capacity and Human Rights at the End of Life workshop. You can download the agenda, presentations from the day, and information on Sue Ryder end of life training sessions below:
Frailty the Forgotten Voice in End of Life Care
On 14th March, in conjunction with the Wessex, KSS ASHN and South West SCN End of Life Networks, we held our event Frailty the Forgotten Voice in End of Life Care. It was a fascinating day with a lot of lively discussion. You can download the speaker biographies and presentations below.
Professor Bee Wee – Overview of the National End of Life Care programme.
Dr Sam Bennett – End of Life Care Commitment.
Professor Jonathan Benger – EOLC Challenges and Solutions for the Urgent and Emergency Care System.
Simon Holbrook & Dr Barbara Barrie – The Optimum Urgent Care Pathway for People at End of Life
Dr Dan Lasserson – Out of Hours Primary Care Use at the End of Life
Dr Caroline Stirling – Recommended Summary Plan for Emergency Care and Treatment (ReSPECT)
Paul Hayes- Finding the Way Forward
Challenging our Thinking- Changing the Status Quo: Examples of Regional Best Practice
Nicola Callam-Parry – ‘Berkshire West PallCall Services’
Lesley Goodburn – ‘Personal Health Budgets at EOL – An Acute Perspective’
Sarah McGaughey –‘NHS home care and nursing home beds’
Dr Steve Plenderleith – ‘The Future Planning Project’
Louise Smith – ‘The Role of Primary Care AUADES+’
Dr James Beattie- The end of life journey for cardiovascular conditions.
Dr Anant Sachdev- The Primary Care Clinician’s role.
Jacinta Godden- Case study -EOLC ICD
Dr Joshua Hordern – Healthcare Values Partnership – Civic Compassion for Healthcare Today
Oxfordshire Age UK – Compassion in Dying: My Life, My Decision – Befriending for Life
Bereavement Support Groups – Age UK Oxfordshire – Late Spring
Medics and end of life care – Typical medical education pathway in UK (PDF)
Rhonda Riachi, Project Manager, Rosemary Martin Clinical Fellow – Health Education Thames Valley (PDF)
Rosemary Martin and Liz Rankin – Handout: Games as part of EOLC training (PDF)
Mary Williams and Fiona Gracie – Embedding learning in practice (PDF)
Frimley Health – Using Simulator Training in End of Life Care (PDF)
Virginia Allum – Scenarios handout (PDF)
Susan Martin, Clinical Nurse Specialist – Dementia and end of life care (PDF)
The North West End of Life Care programme for Care Homes – Six Steps to success (PDF)
Susan Martin, British Journal of General Practice – Best interest clinical decision making for care home residents with advanced dementia (PDF)
Berkshire Advance Care Planning Document – January 2014 – Planning for My Future Care (PDF)
SATMATCO : the Saturday Matinee Company presented their production Connie’s Colander which deals with the unsought of dementia and the relationship between a mother and her Daughter. Please see the clip below. Also please visit the SATMATCO website.
Professor David Oliver, Consultant in Geriatrics & Acute General Medicine (RBFT) & Kings Fund Senior Visiting Fellow –
Making systems fit for an ageing population – Implications for palliative care? (PPT)
Dr Jeanne Fay, GP in Interface Medicine, Witney Emergency Multi-disciplinary unit – Frail, Elderly, Palliative & EOLC (PPT)
Dr Jo Withers, GP Westongrove Partnership (Bucks) and Pippa Stevens (Executive Coach) – Having the conversation (PPT)
Dr Fiona Lisney, Consultant in Palliative Medicine, Frimley Health (Wexham Park) –Difficult decisions (PPT)
TVSCN End of Life Care – Difficult Questions – Update (PDF)
Macmillan GP Facilitator & End of Life Care Facilitator
Consultant in Palliative Medicine & Clinical Lead (Specialist)