TVSCN > Networks > End of Life Care

End of Life Care

*** Please note that the end of life programme is currently on pause, however all the resources and toolkits are still available for download. If you have any questions about the end of life work, please contact ***

One of the SCN’s aims is to support clinical commissioning groups to deliver their end of life care ambitions and plans. To that end, we have appointed Dr Jane Bywater (Consultant in Palliative Medicine, Sue Ryder Hospice, Nettlebed) to provide clinical leadership across Thames Valley and Milton Keynes.

The network focuses on:

  • Implementation of the ambitions for palliative end of life care (click here to read them)
  • Increased adoption of ReSPECT process
  • Increased adoption of electronic palliative care coordination systems (EPaCCS)

We have also been encouraging rollout of the electronic palliative care coordination systems, and in order to do so have produced a report to assist commissioners in identifying gaps in their locality systems. We are delivering a series of workshops to promote discussion around the challenges and barriers to delivering good quality end of life care. Our workstream aligns with the recommendations of the Five Year Forward View (FYFV), in particular around focusing on patient centered care, promoting partnerships and integration across health and social care whilst allowing for local flexibility, with the aim at all times of improving quality via strengthening patient safety, clinical effectiveness and patient experience.

To understand more about policy framework, here are our recommended reads:

To understand more about the inequalities around end of life care, here are our recommended reads:

As first point of contact, please e-mail Julia Coles on

Recent Workshops, Resources & Future Dates

Is There a Ceiling to Medical Care? workshop
On 9th May, we held our Is There a Ceiling to Medical Care workshop. You can download the presentations below:

Caring About Capacity and Human Rights at the End of Life
On 27th March, we held our Caring About Capacity and Human Rights at the End of Life workshop. You can download the agenda, presentations from the day, and information on Sue Ryder end of life training sessions below:

Download the agenda for the day here

Frailty the Forgotten Voice in End of Life Care
On 14th March, in conjunction with the Wessex, KSS ASHN and South West SCN End of Life Networks, we held our event Frailty the Forgotten Voice in End of Life Care. It was a fascinating day with a lot of lively discussion. You can download the speaker biographies and presentations below.

Download the speaker biographies here