Mark Stone

Patient Leader

Dear all

We have received the sad news that Mark Stone, one of our patient leaders for Thames Valley, has sadly passed away from Motor Neurone Disease (MND).

Mark played a significant role in our Patient Leaders Programme and was a key member of the Thames Valley and Milton Keynes Patient Experience Strategy Group.  He played a key role in the CCG assurance process and trained other Patient Leaders to do the same.

Despite being diagnosed with MND in 2012, Mark worked tirelessly to bring about positive change for patients. His passion and drive led him to become an MND Association Trustee and a member of the John Radcliffe MND Research Committee, personalisation groups and other NHS bodies. He campaigned successfully with local MPs, parliamentary committees and senior NHS managers for those with neurological conditions; including seeking a parliamentary debate. Mark also persuaded local councillors to support key improvements for people with disabilities and MND and was involved in an Age UK/Healthwatch project on National Dignity standards.

As well as being a Lay Partner for Oxford AHSN Clinical Innovation Adoption team; and NHS England Thames Valley Clinical Senate, Mark led a project to involve patients, GPs, pharmacists and providers on Oxfordshire discharge process improvements.  His ongoing work and commitment to championing the patient voice led to him being shortlisted, along with fellow patient leader Carol Munt, for the 2015 Health Service Journal Patient Leaders awards.


Here is a tribute from the MND Association.